Just a quick update as Gary hasn’t done one for a while.
I think that the main reason for no updates is that the twins have been fairly stable, with no major changes for a while. They’ve been a bit up and down, as previously, but nothing too worrying or critical.
They didn’t have such a great day yesterday; they were both struggling a little bit, but we think they’re just getting tired again. Not surprising, considering all of the things they are doing that they shouldn’t have to do at all yet!
Smidge was not having good results from his bloods when I called yesterday morning for an update, so they were going to put his mask on (instead of the prongs for his CPAP) as he preferred that, pop him on his back as this is his preferred position, and give him a blood transfusion later in the day to see if that perked him up enough. Unfortunately it didn’t, so he’s back on the ventilator as of last night, but it’s what he needs to give his body a bit of a break. They told me when I was there last night that they will try to wean him back off it today and see if he tolerates that. If not he’ll probably be on it for a couple of days to have a nice rest.
It’s not as bad as it might seem, as all preemies will end up back on the ventilator at some point when they are this early – we were well prepared for it, so I’m not worried until I’m told to be. Plus, I’d rather Smidge was given a break before he gets too tired and it causes other issues, and as long as the machines fix the issues he’s been having it’s all good as far as I am concerned.
When I saw him last night he did seem considerably bigger, though – he’s now 910 grams, and looks it! I didn’t spend as much time with him on Wednesday, so it’s amazing the difference you can see!
Smudge is still very fragile, put plodding along fine. Her oxygen levels have been steadily increasing over the past few days, so they’re just keeping an eye on that. She’s currently on 40% oxygen, when air is nearly 21%. Her feeds have been increased to 1.5ml every hour, so that’s good, though her brother is currently on 2.5ml an hour, I think! It’s good that they are both feeding, though.
Smudge was nicely settled when I arrived at the hospital last night – tucked on her tummy, with her hands where *she* wanted them to be, and all snuggly. That was, until about 11.30 when we turned her over to do her cares, then she was all wiggly! She definitely prefers it on her tummy, whereas Smidge prefers his back. Once I’d fed and cleaned her, I just stood for ages with her holding my finger, which was lovely. Then I had to head off, but she didn’t want me to go, as she kept tight hold of my finger!
On the subject of cares, it’s amazing how quickly I’ve got to grips with changing nappies and wiping little tiny mouths! Especially considering that I had *never* changed a nappy until we had the twins. They are both now out of the teeniest tiniest nappies, and into the size 0 that you can buy in the shops. The funny thing is that there’s a massive difference in the two sizes, so they re a bit drowned by the new ones. When I changed Smudge last night, the new nappy came up to her armpits!
The expressing is still going well; at the rate they are taking it, they have enough to keep them going for months! I’m sure it won’t be long before they are taking a lot more, though. It is a bit of a faff trying to fit in the “feeding” around various things I have to do, especially when those things are outside the house, but I’m doing okay so far. Today could be more difficult, as I’m at my works Christmas lunch for most of the afternoon, but we’ll see what happens. Then I’m off to see them tonight, but I’m not sure if Gary is coming or not. We’ll see how it goes later on.
Thanks to everyone for your comments, cards, support and wishes – they are very welcome and gratefully received. It’s good to know about others who have been in similar situations – I didn’t realise quite how many babies came through “Customs”! The twins are doing well, and long may they continue to do so 🙂